Health Services ResearchInnovative patient engagement strategies in research and training the next generation of healthcare providers to achieve health for all
REACHnet is utilizing health information technology to overcome barriers to pragmatic research.
The Common Data Model and REACHnet's Global Patient Identification system enables the creation of a single health record for each patient.
Programs and Initiatives
REACHnet is focused on improving the efficiency of patient-centered comparative effectiveness research by establishing an innovative, health informatics-driven data collection, patient engagement, patient recruitment, and trial management infrastructure for a representative patient population to serve as a foundation for pragmatic research. REACHnet’s primary research focus areas are diabetes, weight management, sickle cell disease, and rare cancers. REACHnet is one of 13 Patient Centered Outcomes Institute (PCORI)-funded Clinical Data Research Networks (CDRN). It provides a unique infrastructure for engagement of patients and providers for patient centered research, including: access to longitudinal clinical data for more than 3 million patients across Louisiana and Texas, the innovative Pragmatic Trial App Suite (PTAS) to conduct more efficient clinic-based research activities, engagement opportunities with a network of patient and community stakeholders to inform research, and collaborative opportunities with multi-stakeholder groups to drive research agendas and project development.
Health in Our Hands
Health in Our Hands is the patient-facing initiative of REACHnet that uses the knowledge, expertise and opinions of people to build a community that influences improvements and innovations in healthcare by recognizing individuals as the experts on their own health. Health in Our Hands gives people the opportunity to share what health issues are important to them and brings together patients, doctors and researchers to work together to improve healthcare. This patient network is increasingly being used by health researchers to provide a patient voice to the research team and ensure projects are addressing the issues and outcomes most important to the patient community. The network can expedite the research process because researchers don’t have to build the data infrastructure or collect the baseline data. They can use data collected from the Health in Our Hands patient network that are relevant to their question, and can use the network to efficiently collect additional data.
Med Ed is a PCORI funded project that will develop and implement a training and curriculum to increase the skills and capacity of medical students to engage with patients during their future careers as physicians and clinician researchers. MedEd will employ principles of patient engagement and community-based participatory research in the curriculum development process.
Current Research Studies and Clinical Trials
The list of research projects utilizing REACHnet services is continually expanding, and currently includes areas of research such as diabetes, weight management, and clinical trials informing care for patients Chronic Obstructive Pulmonary Disease and Chronic Heart Failure.